This week Giuliana had her 4 month pediatrician visit. She is weighing in at 14lbs 2.4 oz and 23 1/2" long. Just when I start to forget that she is a special needs baby, it all comes crashing back. At this appointment, Giuliana's doctor noticed that her right leg is about a half of a centimeter longer than her left leg. Hemihypertrophy/Hemihyperplasia (people just say Hemi) is a characteristic of Beckwith-Wiedemann Syndrome. This is where one side of the body, or one part of the body is enlarged. It can be in length and/or girth. Her doctor didn't exactly call it Hemi, but the more I look at her legs, the more I see the difference. If you'd like to learn more about Hemi, someone on my BWS group emailed a link
http://www.hemisupport.com/. The doctor said we'll just watch it for now. We are also in the process of getting a referral for Giuliana's sleep study, as well as a swallow study.
Giuliana being cute with her 80's Rocker hair
Giuliana will now join us at the dinner table. Even though
she is not eating solids yet, we decided to have her get used
to sitting in the highchair, and to include her with mealtimes.
Giovanna has been upgraded to a seat at the dinner table!
Tonight was her first meal sitting in her "Big Girl" chair, and
she did really well. The mess was minimal too!
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